Nordic Rare Disease Summit 2021

The impact on those who suffer from rare disease and their families can be profound. Rare Diseases can often lead to low levels of quality of life and high levels of disability, stigmatization, and social isolation.
To understand and overcome these we need to work together and share knowledge across countries, across expert groups and consult people who are living with rare diseases.

At the Nordic Rare Disease Summit, you can meet politicians, patient representatives and leading experts within rare diseases from all Nordic countries, who will present new findings, share best practice, and participate in discussions on how to elevate the area of rare diseases in order to support and empower people living with rare diseases.

Themes for the summit are: Reduction of diagnostic delay, Empowerment of patients, and Improvement of access to innovation.

The summit is organized by Takeda and hosted in collaboration with Rare Diseases Denmark (Sjældne Diagnoser).

We hope you will join our first ever virtual Nordic Rare Disease Summit!